Showing posts with label suffering. Show all posts
Showing posts with label suffering. Show all posts

Wednesday, 13 December 2023

Can I die now?

I'm all in favour of assisted dying, meaning dying at a time of my choosing rather than waiting for my death to occur naturally, perhaps with a terminal illness and after months of agony, incontinence, dehydration and other awful complications.

Baroness Meacher tried in 2022 to change the law to allow assisted dying, but she didn't manage to do it before the end of the parliamentary term, when it fell by the wayside.

The actor Diana Rigg strongly supported assisted dying before she herself died of severe cancer in 2022, after months of miserable suffering. She didn't understand why people were expected to go through such suffering rather than dying at the earliest opportunity.

Of course there are people who fear that a law permitting assisted dying would be exploited by those with bad intentions like wanting to get their hands on someone's money. But they would surely be a tiny minority, and appropriate safeguards would be built into the legislation.

There is clearly widespread support for assisted dying. A 2019 poll of over 5000 UK adults found that 84 per cent supported some form of assisted dying. In which case MPs should stop dragging their feet and legislate for it.

I would hate to have to be looked after for months while I waited in agony for my death to arrive. Being permanently incapacitated for no good reason except "allowing nature to take its course" would be dreadful.

I'd just want to say goodbye to my wrecked and ravaged body.

Pic: Diana Rigg

Sunday, 19 February 2023

It could be worse

It always annoys me when people don't take other people's difficulties seriously but casually dismiss them on the basis that "others have it so much worse."

How often do you hear someone saying that X shouldn't be depressed or anxious or distressed because they have a great life compared to people in other countries who have real problems to worry about, like drought and famine and earthquakes and civil war. They should consider themselves lucky to have such minor problems.

But those problems aren't minor to the people coping with them. Severe psychological blocks that interfere with your life and your relationships need to be properly responded to and not dismissed out of hand.

It all assumes a sort of "league table of suffering" in which one person's suffering is rated as low down the table and someone else's suffering is way up at the top. As if X's suffering is not true suffering but Y's suffering is the real thing.

But suffering is suffering. Is my desperate grief over the loss of a loved one any less important than the misery of an earthquake victim who has lost her home? To an onlooker, one might seem less significant than the other, but to the person concerned their distress might be totally overwhelming and incapacitating.

Certainly I'd be pretty pissed off if I was severely depressed and someone said to me "Oh, you're not really depressed, Nick. You're simply not the type. You're as tough as old boots. Just give yourself a good talking-to and you'll be fine." Which would be about as helpful as a kick up the bum.

Saturday, 27 November 2021

Assisted dying

I strongly support voluntary euthanasia, or assisted dying. So I was interested to hear that politicians on the island of Jersey have approved the principle of assisted dying. Details of the procedures and safeguards will now be worked up, for a draft law in 2023.

I've read so often of people with terrible terminal illnesses, illnesses that cause constant pain, destroy their quality of life, and impose a huge burden on their partners and family, wanting to die but being unable to do so. The stories are quite heart-breaking.

Those who oppose assisted dying always raise the spectre of unscrupulous relatives wanting to get rid of someone and claim their inheritance, but in other countries where it's legal I gather there's scant evidence of such behaviour.

People can be so desperate to die that they arrange it discreetly with their doctor and family, who cover it up by presenting the death as due to natural causes. Or they travel to the Dignitas centre in Switzerland, which enables assisted dying for members of the organisation.

I would hate to be suffering from some appalling terminal illness but be unable to end the misery. I would want to finish with my suffering at the earliest opportunity. I don't see anything commendable about enduring such hardship until the bitter end - which could be decades away.

I wouldn't want Jenny to have to put the rest of her life on hold in order to care for me, with all the messy and distasteful tasks that would involve. Why should she have to make such a sacrifice?

(Assisted dying may in fact be legalised in the rest of the UK. The Assisted Dying bill is currently progressing through parliament, but I've no idea when it would become law. The bill is modelled on legislation that has been in place in Oregon, USA, for 23 years, since adopted by nine other American states plus the District of Columbia, five Australian states and New Zealand)

Saturday, 27 February 2016

Suck it up

One of the worst things that can happen to you is to be in constant fear of someone else. Worse still, when people don't believe you or won't do anything about it.

Which is why I'm following the case of the American singer Kesha and her record producer Dr Luke Gottwald with great interest.

It seems outrageous that a judge has denied the singer's request to be released from a six-album recording contract with Dr Luke, who Kesha claims physically, mentally and sexually assaulted her for ten years and left her permanently scared.

If you can't even rely on the courts to protect you, because the sanctity of a commercial contract is deemed more important than personal safety, that's a sorry state of affairs.

It's odd that the judge was so indifferent to Kesha's suffering. British contract law says there must be "mutual trust and confidence" between both parties, which clearly has broken down in Kesha's case. But maybe the law is different in the States.

Personally I haven't been in fear of other people that much. I was often scared of my father's foul temper. I was often scared of the other pupils at my boarding school, who bullied me on and off for four years. I was often scared of a tyrannical line manager who thought nobody did their job properly except himself. But thankfully I've never known the dreadful experience of being terrified of someone day in and day out, with no end in sight and no support from anyone else.

Kesha's case unfortunately reinforces the idea that if someone's abusing you, you'd better just put up with it and stop whinging. Don't try to get help from anyone else because they'll just laugh at you and walk away.

Many celebrities have pledged their support for her and demanded that the record contract be cancelled, but whether they'll have any effect is anyone's guess. Watch this space.

Pic: Kesha

Sunday, 24 August 2014

The final step

It's easy to understand someone killing themself because of a serious physical illness, or the early signs of one. Obviously they don't want to suffer endlessly or rely on long-term care.*

But when it's suicide after mental distress, people often say they don't understand why the person did it. They wonder why they didn't ask for help or why they didn't respond to the help that was given. Surely there was no need for such a drastic step?

They may even be totally unsympathetic. They may say suicide is selfish, or weak, or melodramatic, or even callous. Did they realise the grief and guilt they were inflicting on their friends and relatives?

I find such lack of sympathy and understanding quite startling. I think it's a failure of imagination, of the ability to see the extremities of pain and distress and misery the person is enduring, pain so severe that any amount of advice, therapy, drugs, support and chivvying is never going to soothe or cure it. Their psyche is so fractured, their emotions so disordered, that life is just an intolerable burden they have to get rid of.

Jenny and I had a friend who was diagnosed schizophrenic for over 30 years. When we visited her she would put on a show of being cheerful and ebullient but sometimes the mask would slip and we would see just how unhappy she was underneath. Her future was obviously cruelly limited and stuck, and eventually she killed herself. Numerous people had tried to help her but her distress was too deep-rooted to be extinguished.

It's all too common to misinterpret severe despair or depression as "being a bit pissed off" or "being up against it" and not recognise the depth and breath of an overwhelming hopelessness. Even if you recognise it, the person may feel too ashamed or timid or paralysed to admit it.

Such suffocating and unyielding misery is all too understandable. The tragedy is that even if you understand, you may be powerless to put things right.

*This suicide note from Gillian Bennett, who was in the early stages of dementia, is astonishingly rational and clear-sighted. No way was "the balance of her mind disturbed", as the cliché has it.

Sunday, 2 August 2009

Debbie's breakthrough

After years of legal action, Debbie Purdy has won a court ruling that may make it easier for someone to help her commit suicide - in this case, her husband Omar.

At the moment the law on assisting suicide is so unclear that the helper risks being jailed for up to 14 years. Yet in practice such helpers are seldom prosecuted.

Debbie, who has multiple sclerosis and wants to end her life if it becomes unbearable, has gained a ruling that the government must clarify the law and explain when it would prosecute someone.

She was concerned that if Omar simply helped her to fly to the suicide centre Dignitas in Switzerland, as she couldn't manage the journey herself, he would end up in jail and his own life would be ruined.

On the face of it, a great victory for people like Debbie who feel legal obstacles are limiting their ability to manage their own life - and death.

However, there's now a lot of concern that whatever guidelines are issued may relax the law to such an extent that it will be abused and wealthy grannies will be casually got rid of by money-grabbing relatives.

But that's no reason to bring in ultra-strict guidelines that make assisted suicide as difficult as before. It just means there should be adequate safeguards against abuse - like two doctors having to give their okay.

Anything that makes it easier for someone facing agonising pain and suffering to end their life with dignity whenever they wish to should be welcomed, despite the risk of the law being abused.

Expecting people simply to put up with their lot as best they can, however traumatic it may be, is inhuman and uncivilised.

Photo: Debbie Purdy and her husband Omar Puente

Saturday, 13 September 2008

A dignified end

Under English law, if you help someone else to die because they are suffering from an unbearable terminal illness, you can be prosecuted for assisted suicide and jailed for up to 14 years.

Although people aren’t usually prosecuted and the authorities generally turn a blind eye, the law still exists and relatives who help in this way always risk this draconian penalty.

Now 45 year old Debbie Purdy, who has multiple sclerosis and wants to end her life with her Cuban-born husband Omar by her side, is taking legal action to force the Director of Public Prosecutions to state his policy on prosecuting assisted suicide.

She is planning to visit Dignitas, the Zurich clinic that helps terminally ill patients end their lives in comfort and dignity abroad.

But the legal uncertainty is causing her great anxiety. "I can't let Omar travel with me to Switzerland because that might be construed as assisting me in my death," she said. "But he says he is prepared to face jail if he could do something to stop my life being unbearable."

I think it’s quite wrong that people who seek to die because of their wretched quality of life, and want a loved one to help them, are still triggering a so-called crime that could put someone in a prison cell for a lengthy period.

I certainly wouldn’t want to spend years in pain and suffering, unable to enjoy life as I had in the past, and feeling increasingly despondent and hopeless. I would much rather end what’s left of my life. I don’t see why the law should deem anyone helping me to be a criminal in the same way as a murderer or a rapist.

People always raise the ugly spectre of relatives being got rid of for some malicious purpose like inheriting their money or moving into their house, but I’m sure safeguards could be arranged to avoid that sort of abuse. This remote risk shouldn’t prevent people ending intolerable suffering.

I hope the DPP recommends scrapping this insensitive law as soon as possible.

Photo: Debbie Purdy and Omar Puente

Saturday, 8 December 2007

The greatest gesture of love

It must be terrible to see your partner in the throes of a terminal illness, but shooting them dead to end their suffering is astonishing.

That's what Vitangelo Bini did to his 82 year old wife Mara in a hospital ward in Prato, Italy. One newspaper called it "the greatest gesture of love" - il più grande gesto d'amore.

Mara had had Alzheimers for 12 years and Mr Bini had borne most of the burden of looking after her. She was no longer able to recognise her husband or anyone else, and had lost the power of speech.

Mr Bini, unable to see her suffering drag on, shot her three times in front of the other patients and medical staff, and then immediately gave himself up to police.

Over 900,000 Italians are afflicted with the disease, but the Catholic Church won't countenance mercy killing, however dreadful the circumstances.

It must be unbearable to watch your loved one wasting away from some corrosive illness, but not many of us would have the nerve for a mercy killing, never mind shooting.

I like to think that if it came to it, I would help someone die and put them out of their misery, but who knows if I could actually go through with it?

Would I risk other people's condemnation and hostility to have the courage of my convictions? It must be an excruciating decision to make.

But once the quality of life someone is accustomed to has all but drained away, and they've become little more than a helpless vegetable, how can it be right to let them linger on like that indefinitely?